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APPENDIX D

Discharge Summary

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2.

Specific presenting problems which are creating the need for placement.

Goals:

Description of targeted short term goals necessary to prevent institutional care based on the presenting problems and as outlined in the Treatment Plan.

Methods of Intervention:

Description of the specific methods used to achieve the short term goals as outlined in the Treatment Plan.

Progress Toward Goal:

Statement of level of progress made toward each short term goal as outlined in the Treatment Plan. Levels of progress used in Treatment Plan as the measurement tool are:

1. Goal exceeded

2. Goal attained

3. Substantial progress toward goal

4. Little or no progress toward goal

5. Regression from initial status

Plan for Family at Discharge:

1. Description of the plan, if any, for the family or any
family member at the time the family is discharged from
Project services.

2. Any long term goals the family is working toward through
the services developed as part of the discharge plan.

Mr. MILLARD. Rensselaer County, which is contiguous to Albany County, also wants such a program but they feel there are absolutely no funds available to do it. We could provide them this preventive program if funds were available.

We recognize the important legal and financial responsibilities of the States. It is evident that child welfare services not only rely on title XX funding, but necessarily must rely on other kinds of separate. distinct, and interacting Federal and State programs including title IVB, the AFDC foster care program, child abuse and neglect, runaway youth, and juvenile justice and delinquency prevention program. If I may, Senator, I would like to cite two quick cases.

Senator MOYNIHAN. Please do, and then we are going to have to keep to our time limit.

Mr. MILLARD. Yes, sir, I understand. One is a success and the other is a tragedy as a result, I think, of the lack of title XX funds.

A retarded crippled child, who was moved from an institution into adoption, is now walking and the testing of that child's mentality has increased tremendously. Also this child will now someday walk, when previously she was absolutely wheelchair bound. That is the success. The tragedy, within the last few months, it was reported-and I am only reporting from the newspapers. I have no privileged information that a 6-month-old baby was scalded to death by her mother. The mother was placed in the county jail with the implication that certainly beyond the criminal charges, there was possible intent. The local counties' abuse cases have gone up from 400 to 900 cases during this time. They have not had the funds to increase their staff. I might suggest it could be speculated that such tragedy might have been avoided if there had been these kinds of funds available.

Senator MOYNIHAN. Thank you.

Mr. MILLARD. I will skip on quickly if I may and just say that we certainly support the administration's recommendation to extend the $200 million of title XX funds at 100 percent funding. to encourage States to implement day care services and maintain standards. We also support the remaining amendments of H.R. 12973.

Thank you, Senator.

Senator MOYNIHAN. Thank you, sir, and I would like the record to show that Parsons Child and Family Center is deservedly famous in this Nation as one of the founding enterprises of its kind in the American republic, and it is an honor to have you here.

Senator Curtis?

Senator CURTIS. Thank you, Mr. Chairman.

Mr. Millard, I do appreciate the specific figures you gave on costbenefit ratio. There are many things I would like to explore, but time does not permit.

Mrs. Everitt, I think it would be well for you to state on the record for the information of the committee, because we get tied up in generalities about these programs, what sort of things do you do for the retarded people with this money that is provided?

MS. EVERITT. Well, Nebraska has, and I can only speak directly about Nebraska, has a wide continuum of community based mental retardation programs in which we have group homes, we have supervised apartments, we have semi-independent living where we have live-in supervisors. We have workshops, we have work activity centers. We

have what we call adult day care which is sometimes called prelocations for severe and profoundly retarded adults. We have preschool programs, social services, which means everybody in the program has a case worker, respite care.

Senator CURTIS. And what programs do you have for training in the lesser skills, for the mentally retarded?

MS. EVERITT. Are you talking about for severe and profoundly retarded people?

Senator CURTIS. Yes.

MS. EVERITT. We do have, it is a work shop, per se, but there's a lot of life skills taught, a lot of independent living, a lot of social skills that we use for very low functioning people. We also have that kind of program for preschool which is not funded through this.

Senator CURTIS. Now, you referred to very low functioning people. What is the range of children and adults that fall within the general definition and come under your services?

MS. EVERITT. Well, I hate labeling as far as IQ, that kind of thing. We have got

Senator CURTIS. Well, then, let's put it then on the degree of helplessness, what are the worst situations so far as helplessness is concerned, and then at the other end of the pectrum, what can they do for persons who need some help?

Ms. EVERITT. Well, we have some people who happen to be friends of mine who are in our adult day care program who are probably in their twenties who do not have toilet training, who do not have speech, who do not even sit up. We also have small children, but I think there is where the value of the money is pointed out because the children that I have known that have been in our preschool program who have had good developmental programs are not ever going to be in the same shape, to my way of thinking.

I have an adult daughter who I can see now, who if had the benefits of the programs that the kids have now would be doing a lot more things than she is. I mean, when she was young, we ran little programs that the parents had, Tupperware sales and those kinds of things, you know, it was a program. That's about what it was. It was not a developmental.

We also have some people in our program who the only service they receive from our community based programs is social services. In other words, they have a case worker assigned to them. They do not-they are in competitive employment but they have someone who works with them on their checkbooks, these kinds of things. So we have a full range of services for people. But the problem is now, without any funding, we can't add any new people. That is the problem.

Senator CURTIS. Does mental retardation cross all economic lines? Ms. EVERITT. Oh, yes, sir.

Senator CURTIS. But in some situations

MS. EVERITT. Very much so.

Senator CURTIS [continuing]. The need is greater because the individual or their family are so limited in resources they can't do much. about it.

MS. EVERITT. That's true, environmental kinds of impairments. Senator CURTIS. I have always felt that the first priority of Government funds for helping people should go to those people who can

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